JONATHAN STONE
From Imagining to Managing

Hello, I am a performer, writer, musician.

 

I  have made many performances, music, films, writings that cross genres

and boundaries of language and culture.

 

But my world has changed...

I was younger once and although still busy, I have stepped back. Some years ago I began to fall over. I took MRI scans, CAT scans, electrical nerve tests ... Eventually, after genetic tests, I was diagnosed:

'Spinal Cerebellar Ataxia 17! Incurable!', the doctors told me.

 

The diagnosis was scary, but although they know a lot, it's still incurable and

 

still a mystery. There are many types of Ataxia and many variable factors. Its

 

confusing but helped by exercise and diet, I don't get doom laden.

 

I am fortunate compared to many people with Ataxia. 

This coming October I am doing a fundraising hike for Ataxia at the Grand Canyon  in the US, organised by the National Ataxia Foundation.

 

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Otherwise I am semi-retired  but I am keeping busy:

 

       - I have completed an 86000 word memoir of my life,

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          SIDEWAYS WITH INTENT

 

          from childhood up until 2023.

          It also includes writing about performance, music, humour, magic                 and spirituality, coping with bereavement, dysfunction and disability.                

Here is a link to the beginning of the memoir.

     

 -I have been playing and writing music.

       -I have been adapting my performance knowledge, movement, musicality, awareness, towards working with well being and disability.

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     Whether imagining or managing,

this website shows what I've done and what I'm doing - 

​​I'm always up for new ideas, new projects, so get in touch!.

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