
JONATHAN STONE
From Imagining to Managing
Hello, I am a performer, writer, musician.
I have made many performances, music, films, writings that cross genres
and boundaries of language and culture.
But my world has changed...
I was younger once and although still busy, I have stepped back. Some years ago I began to fall over. I took MRI scans, CAT scans, electrical nerve tests ... Eventually, after genetic tests, I was diagnosed:
'Spinal Cerebellar Ataxia 17! Incurable!', the doctors told me. The diagnosis was scary, but I don't get doom laden and depressed. Exercise and diet.I am fortunate compared to many Ataxians. Everyone has got something. We're all different!
This coming October I am doing a fundraising hike for Ataxia the Grand Canyon, organised by the National Ataxia Foundation in the US.
.
Otherwise I am semi-retired but I am keeping busy:
- I have completed an 86000 word bio of my life from childhood up until 2023. It also includes writing about performance, music, humour, magic and spirituality, coping with bereavement, dysfunction and disability,
-I have been playing and writing music.
-I have been adapting my performance knowledge, movement, musicality, awareness, towards working with well being and disability.
Whether imagining or managing,
this website shows what I've done and what I'm doing -
I'm always up for new ideas, new projects, so get in touch!.